In August of that same year I was ready for a half marathon. It
was a hot day and again, I finished last in three and a half
hours. Bob Glover, our trainer at the Y, ran with me and to cool
me off, he kept pouring water over my head. As the race
progressed, my leg felt heavier and heavier, but I attributed
that to the distance and my fatigue. After the race, when I took
off my prosthesis, a quart of water poured out, the run-off of
Bob's attempts to keep me cool.Again, the story of the man with the artificial leg running
races made the headlines. I was deemed an inspiration. I suppose
that was nice, but I wasn't trying to be inspirational, I was
being normal. Every disabled person who does more than get out
of bed in the morning and brush his teeth gets a large amount of
support. On one level, we are just the same as any able-bodied
person who undertakes the same activity. Disabled golfers are
just trying to play golf, the same as a disabled skier wants to
ski or a disabled runner wants to run. I didn't want to be the
official inspirator. That role tends to make the person an
outsider, larger than life, and I wasn't.
My next race was a 30K (18.7 miles) in Central Park. By now I
was geared up for running the New York City Marathon that fall.
I was doing two two-hour runs and one three-hour run a week on
the Y's track. The 30K route winds through the park on the same
roads shared by cyclists. The police did their best to keep the
groups apart, but I got whacked by a cyclist and my prosthesis,
which is held on by suction, was knocked off and skidded along
the pavement. The cyclist spent a horrible few seconds thinking
he had severed my leg. As I sat there reattaching it, he
apologized profusely and took off as fast as he could.
After the 30K, I was ready for the marathon. This was the first
year of the five-borough route and Fred had asked Frank Shorter
and Bill Rodgers to run it, along with 2,090 other runners. For
safety reasons, Fred decided I should start earlier than the
main pack so that I wouldn't end up late at night at a deserted
finish line, since my anticipated time was somewhere around
eight hours. I spent so much time preparing and anticipating
that it was no longer fun, it was nerve racking. I just wanted
to get it over with and started at 6:50 a.m. My support group,
which included my wife and brother-in-law followed me in the
car. They brought along a pair of crutches just in case I needed
them. The problem with running long distance with a prosthetic
leg is that, eventually, the stump starts to bleed. No matter
how much you train, there are places on the stump that won't
callus over, particularly on the back of the leg. The bleeding
itself isn't a big deal, although it does look gruesome when the
blood starts dripping down the leg. The danger is of infection
setting in if the wound doesn't have time to heal.
Once I got under way, I started to have fun. I didn't have the
pressure of any other goal than to finish. I couldn't fail, as
no other amputee had attempted to run a marathon before. The
norms of society, and of sport, dictated that it was an
impossible event, but I was soon to let it be known that it was,
indeed, possible.
When I arrived at the ten-mile marker, we came to an
intersection with three crossways, and I chose the wrong one,
going about a half mile out of my way before realizing the
error. I thought about getting into the car to drive the
distance back to the right roadway, but thought if someone saw
me in a car I could be accused of cheating, so I ran an extra
mile to ensure a valid win.
At eighteen miles the lead runners began to catch up with me,
whizzing by as if I was going backward. Bill Rodgers passed me
by, yelling, "Thataboy, Dick." That had to be one of the most
exciting thrills of my life. Now that the entire race was in
full swing, the crowds were lining the streets, something I
missed by starting early. The last time I heard the roar of a
crowd was at a wrestling match in college, but this was even
better. I was hurting from sheer physical exhaustion, but when I
heard the cheering, it carried me along. I wasn't going to stop
now. The last quarter mile, when the crowds were at their peak,
they roared as if I was running down a football field for the
winning touchdown.
I finished in 7:24, breaking my own prediction by half an hour.
I was more tired than happy when I crossed the finish line, but
the excitement wasn't over yet. The Road Runners Club was
holding an awards ceremony at Avery Fisher Hall and after the
top runners received their medals, I was called up. After a
prolonged standing ovation, my medal was hung around my neck,
and the air was electric. It was something I had never felt
before and never expect to feel again. It was just unbelievable.
The sound of the clapping continues to echo in my ears. That day
remains very special to me and if I had one day to live over in
my lifetime, it would be my first marathon.
The papers went crazy with the story. It even made the
International Tribune. One spectator summed it up best: "I was
amazed to see a man running with a wooden leg. I couldn't
believe a person with a handicap could work up the nerve and
strength to compete. It says our troubles aren't so great. If he
has enough stamina to do that, we have enough stamina to do what
we have to do." The media had turned me into Rocky.
I continued to run, but not as much as I had while training for
the marathon. A son was added to our family, and he would
accompany me on his bike while I did a few laps around Central
Park. I decided I wanted to try the granddaddy marathon of them
all, Boston. But when I made inquiries, I was told I wouldn't be
welcome at Boston. They told me it was a serious race for
serious runners, not a three-ring circus. I was upset by their
reaction, not as much by the insult as by the fact that I was
being excluded. None of this really bothered me much, after all,
I had New York.
Not long after my headline event, I met a woman who had lost her
leg in a mountain-climbing accident and had just been fitted
with a prosthesis. She asked me to give her some advice on
running with it, so we spent the day in the park running the
reservoir until she felt comfortable. A while later, I got a
call from another amputee who also wanted advice on running with
a prosthesis. Soon I was getting numerous calls from amputees
all over wanting advice and I found myself coaching by phone. I
also began noticing more disabled people entering road races and
an idea began to germinate: helping disabled people get involved
in running through the New York Road Runners Club.
With the backing of Fred Lebow, I sent out a letter to eleven
hundred doctors and other medical professionals on the club's
mailing list, figuring they might have disabled patients or know
of some. We set a forty-dollar fee for an eight-week series of
training sessions, taught by Bob Glover. Back then, I only
thought of amputees as being disabled since I knew nothing of
the range of the disabled community. I didn't expect much at the
first meeting, but only when only two people showed up, I
thought Fred would pull out of the program, but instead he
said, "It's a success."
Linda Down was one of our first members, a bright young woman
born with cerebral palsy. Before she started running, she
couldn't do ten sit-ups, but was soon navigating the streets of
Manhattan. Running was slow and painful for her. She needed
crutches to navigate and would lead with her left leg, swinging
her right leg in a big, awkward arc that would scrape her toes
along the pavement. With each footfall, her toes were mashed
inside her running shoes. But she persevered with her training
and finished the 1982 marathon in eleven hours, crossing the
finish line at 9:30 p.m. Her gutsy performance won her a visit
to the White House with the other winners. She never did pay her
forty-dollar fee, but we never asked for it and ultimately
decided to make membership free.
Despite Linda's performance at the marathon and my constant
mailings, membership was scant. The classes built slowly and by
the end of eight weeks we had eight more or less regular
members. We decided to change the weekly training sessions into
a running team, dubbed "Achilles" after the Greek hero whose
mother dipped him into the River Styx at birth, making his
entire body invulnerable except the little spot on his heel
where she held him. We were on our way.
Those first initial weeks were awkward for me because although I
am disabled, I don't think of myself that way and really didn't
know anything about other disabled people. I didn't know if it
was proper to ask them about their disability, whether or not it
was appropriate to help them or offer assistance. One woman in a
wheelchair would scream at our volunteers if they so much as
touched her wheelchair. She thought of her chair as an extension
of herself and felt personally violated if someone touched it.
As word about the club spread, more disabled people started
showing up, but not just amputees. We had blind people, stroke
victims, cancer patients, people in wheelchairs, MS, cerebral
palsy, and one member who was born without legs and only short
stumps as arms. He had been in foster care as a child. When he
got into high school, we recruited him, trained him, and he
completed a marathon by propelling his wheelchair laboriously
with the stumps of his arms. Even he had doubts that he would
finish, but when they hung the medal around his neck, he was
happier than he had ever been in his life. We have another
member who is also in a wheelchair with cerebral palsy. His
condition is so severe he can't use his arms to move his
wheelchair so he has to push his chair backward with his feet to
move. When he first came to Achilles he couldn't go a quarter
mile but within eighteen months of training he completed a
marathon, kicking backward the entire 26.2 miles.
Cathy Bulboca is another Achilles case in point. She came to us
with a double hit -- first there was the stroke on the left side
of her body, then there was the liver cancer, and then a series
of four ministrokes. None of her doctors advised exercise, but
she had been active most of her life and a fencer in college.
Every time she brought up the idea of exercise, her doctors said
no. Finally she met with a psychiatrist who said, "Go for it."
She showed up and told us her goal was to run a four-mile race.
"When you have a chronic illness, your goals are taken away,"
she said. "Setting a goal of a four-mile race may not be much,
but it gives you motivation. And psychologically, it gives you a
break from your real life."
She completed the race, and to her it might as well have been a
hundred miles. It was the best feeling she ever had. Cathy has
gone on to be an outspoken advocate for the benefits of exercise
in disabled people.
Our training is done with a group of very dedicated volunteers,
who become like family. They are assigned to a disabled person
and stay with them through the marathon. In some cases that
means running at a painfully slow pace, but at other times our
disabled runners, such as some of the blind runners, are faster
than the volunteers. These dedicated people aren't paid and come
from all walks of life. They are a very noble, selfless group
and there would not be a club without them.
Slowly, chapters started to develop in other states by original
members who moved or by others hearing about the program and
being inspired to start one. Then we started going international
with our first overseas break in Poland, in 1987. We now have
over 120 chapters in more than fifty-one countries. The one I am
most proud of is Japan, which has a history of hiding its less-
than-perfect lineage from the world. Disabled people in Japan
are treated like lepers, shielded from the public eye with
practically no government assistance programs. Getting a chapter
of Achilles open and having their disabled people come out from
hiding was a major feat for us and for their disabled
population. Their Tokyo chapter now equals New York City in
membership. We have fifteen chapters in the former Soviet Union,
including four in Siberia, where the number one reason for
having an amputated limb is severe frostbite from falling asleep
in the snow after a night out at the local bar.
Our goal at Achilles has never changed. We treat our members
like athletes, not objects. In the beginning, the idea was to
get them out and moving. We were initially afraid of hurting
them and pushing too hard. Now they get speed work and hill
work. The training is based on the same principles as for all
runners. Linda Down sums it up best: "I discovered I can stress
my worst aspects -- my legs and my body -- and still be
successful. And if I can take my worst aspects and be a success,
then imagine what I can do with my best aspects. The focus now
is what I am able to do rather then what I can't do."
We need to show them what is inside, not necessarily what is
seen on the outside. Only then, can we truly drink in what life
has to offer. Every time human beings realize more of their
potential, whether they are disabled or able-bodied, all of
society benefits.